“Patient involvement and data protection in medicine and medical research and related Ethical, Legal and Social Issues (ELSI)”

© DWIH Tokyo/iStock.com/metamorworks

On Friday, September 17, 2021, at 16:00 (JST) / 09:00 (CEST), the DWIH Tokyo will hold an online event in honour of DFG Heinz Maier-Leibnitz Prizewinner 2020, Dr. Fruzsina Molnár-Gábor.

Dr. Fruzsina Molnár-Gábor was honoured for her work at the interface of health and medical law and data protection law. Through her research, she is helping to establish the field of biomedical law in Germany. She engages in international dialogue with experts in the field of biomedicine, for example. Based on her unique expertise, she is regularly involved in advisory committees at national and EU level.

Event Information

September 17, 2021

Organizer(s): German Centre for Research and Innovation Tokyo (DWIH Tokyo)

Date: Friday, September 17, 2021

Time: 16:00-17:55 (JST) / 09:00-10:55 (CEST) Live streaming on YouTube (open)
18:00-19:00 (JST) / 11:00 – 12:00 (CEST) Group discussion using an online meeting tool (closed) *Registration for the group discussion has already closed

Language: English/Japanese with simultaneous translation

Recording of live streaming (English): https://youtu.be/Az-ftVXCopY

Recording of live streaming (Japanese): https://youtu.be/vD9CFfVG7OU


Objectives of the online conference:

There is a shift in the field of medicine today towards patient-centred approaches. This shift gives rise to issues concerning data protection, especially when personal data is involved and when this data needs to be shared among different actors in the healthcare sector (clinics, researchers, healthcare facilities, etc). This new trend in medicine also makes it necessary to re-define public and patient involvement (PPI). In order to implement new opportunities in the medical field, new stakeholders need to be involved, including policymakers, lawmakers, lawyers and researchers from social sciences or ethics who are able to address the Ethical, Legal and Social issues (ELSI) associated with new medical applications such as genomic technologies.
These changes and the accompanying developments and issues are highly relevant in both Germany and Japan. Research communities are already partly connected, but closer and more extensive dialogue and cooperation is necessary.


Please click on the “Register” button above to register for the lecture, the panel discussion (YouTube live stream), and the group discussion.

Registration for the group discussion (online meeting tool) :
Group discussions specifically welcome early career researchers.
The language for the discussions is English (with a translater present to support).
Please state your own research area(s)/interests on the registration form. We will assign each participant to one of the interdisciplinary discussion groups according to their respective research area/research interest.
You will receive a separate invitation to your assigned group along with your login information. (*The registration for the group discussion has already closed)

Heinz Maier-Leibnitz Prize 2020

The 2020 prizewinners raise their glasses together with the selection committee and representatives of the DFG (Dr. Fruzsina Molnár-Gábor, 4th row, centre).

In 2020 ten researchers, among them Dr. Fruzsina Molnár-Gábor, received the Heinz Maier-Leibnitz Prize, the most important award for early career researchers in Germany.
The recipients were chosen by a selection committee in Bonn appointed by the Deutsche Forschungsgemeinschaft (DFG, German Research Foundation) and the German Federal Ministry of Education and Research (BMBF). They were each presented with the €20,000 prize.

The award ceremony for the 2020 Heinz Maier-Leibnitz Prizes took place virtually on November 12, 2020. Additionally, a film was shown featuring the laudations, the welcoming speeches and the laureates.

Film: https://youtu.be/5_7YKExL5Kk
Homepage: DFG, German Research Foundation – Heinz Maier-Leibnitz Prizes 2020